Privacy of monitoring technology — Guidelines for introducing ambient and wearable monitoring technologies balancing privacy protection against the need for oversight and care - prCWA 17502:2020

Henning Boje Andersen, Thomas Linner, Barbara Schäpers, Maj Siercke, Clare Harney, Aarnout Brombacher, C.A. (Kees) van Luttervelt.

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New technological opportunities for monitoring daily living behaviours of frail citizens in need of care and oversight pose ethical challenges in terms of privacy protection. Sensors located in care receivers’ homes or worn and interacting with their bodies to detect critical events and behavioural trends can not only improve early detection and care quality, but also reduce worries by frail elderly citizens and their families and care givers. At the same time, developments in demographics are leading to a significant increase in the number of frail older people living at home, while non-acute care is increasingly moving into people’s homes. While regulations and guidelines are available for personal data protection and information security, there is no guidance on how to obtain an ethical balance between the duty of care and the need to respect the privacy and dignity of the people who are monitored.
The purpose of this document is to offer a practical, structured guide to achieve such a balance between the respect for privacy and the obligation to provide timely care. The focus of the guide lies on frail or vulnerable citizens and it is intended to be primarily of use for care organizations. It also may have value for families, technology developers and providers as well as regulators and authorities.
The guidelines describe a governance model and an adaptation of the informed consent process to accommodate the use of ambient and wearable monitoring technology in support of care decisions and treatment.
Original languageEnglish
Number of pages20
Publication statusPublished - 2020

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